Coping and Managing ALS Disease in the Family during COVID-19: Caregivers' Perspective






Abstract
Coping and Managing ALS Disease in the Family during COVID-19: Caregivers' Perspectiveby
![]() ![]() ![]() ![]() ![]() ![]() Abstract Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disease that affects motor neurons, the nerve cells in the brain and the spinal cord that enable voluntary muscle movement. Managing ALS is complex and increasingly requires informal care, most often by the patient's companions/spouses or children. The COVID-19 pandemic posed additio [...] |
Mobilization of Autologous Peripheral Blood Stem Cells (PBSC) in CD20+ Lymphoma Patients Using RICE, Granulocyte-Colony Stimulating Factor (G-CSF) and PlerixaforAbstract RICE is salvage therapy for treating CD20+non-Hodgkin lymphoma (NHL). It is combined with G-CSF to collect autologous peripheral blood stem cells (aPBSC). Little data exists, though, on the combination of G-CSF and Plerixafor after RICE in mobilizing adequate number of CD34 cells and the product’s immune content. We report on the results of twent [...] |
Congenital Phenotypes and DMPK CTG Repeat Number in Mothers/Children with Myotonic Dystrophy Type 1Abstract Myotonic dystrophy type 1 (DM1) is an autosomal dominant genetic disease often resulting in more severe symptoms in affected children. The number of CTG repeats is reportedly related to congenital myotonic dystrophy 1 (CDM) severity. In this study, we aimed to clarify whether the number of CTG repeats can predict the severity of symptoms in children [...] |
How Involvement in COVID-19-Related Work Changed Nurses' Job Demands, Job Resources, and Their Associations with Burnout: Evidence from China 1Abstract China adopted a “Zero-COVID” policy for nearly three years, making Chinese healthcare workers constantly involved in COVID-19-related work. However, little is known about how involvement in COVID-19-related work shaped Chinese nurses’ burnout. This study explores how nurses’ job demands and job resources are associated with their burnout by [...] |
Non Solved Contemporary Scientific Problems of Non-Conventional Bio-Surfaces LubricationAbstract This paper presents new non solved, scientific research directions and their applications in contemporary non-conventional lubrication problems of the bio-surfaces domain. Here are described new research scientific trends and research problem solutions of hydrodynamic lubrication for living tissue, human skin and human cartilage joints surfaces. At [...] |
Integration between Geriatric Oncology and Palliative Care: A Single Center Experience for Hospitalized Older Patients with Cancerby
![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() Abstract Comprehensive Geriatric Assessment (CGA) is utilized to plan social and health care of the elderly and to complete the diagnostic-therapeutic choice of oncologist also considering early integration with palliative care. Cancer patients (pts) hospitalized aged ≥70 years were screened by the G8 questionnaire to define if necessary CGA. CGA identified: [...] |
An Interview with Dr. Terry FulmerAbstract InterviewAn Interview with Dr. Terry FulmerOBM Geriatrics Editorial OfficeLIDSEN Publishing Inc., 2000 Auburn Drive, One Chagrin Highlands, Suite 200, Beachwood, OH, USA; E-Mail: geriatrics@lidsen.comOBM Geriatrics 2023, volume 7, issue 1 doi:10.21926/obm.geriatr.2301229Received: March 15, 2023Accepted: March 15, 2023Published: March 22, 2023 |
Influence of Biogas Digestates on the Composition of Soil Organic MatterAbstract The increasing number of biogas plants with various digested organic materials and output of digestates calls for more detailed investigations of their suitability as soil amendments. In a trial in Northern Germany two replicate plots each were treated with fresh or prolonged fermented digestate to investigate the influence of digestates on the composit [...] |
Open Access Short Communication Evolution of Psychosomatic Diagnosis: From Masked Depression to Somatic Symptoms and Related DisordersAbstract This paper discusses the history and the concept of somatization from masked depression to somatic symptoms and related disorders in the Diagnostic and Statistical Manual of Mental Disorders (DSM). Evaluating the evolution of these terms and concepts along the time course is very interesting. DSM 5 revision was intended to increase the relevance of [...] |
Transfer Learning for Fault Detection with Application to Wind Turbine SCADA DataAbstract The installed wind power capacity is growing worldwide. Remote condition monitoring of wind turbines is employed to achieve higher uptimes and lower maintenance costs. Machine learning models can detect developing damages in wind turbines. Therefore, this paper demonstrates that cross–turbine transfer learning can drastically improve the accuracy [...] |
Optimizing Lymphedema Outcomes through Lifestyleby
![]() ![]() Abstract Lymphedema, a chronic incurable condition characterized by edema, inflammation, reactive fibrosis, adipose proliferation, and compromised immune function, affects over 250 million people worldwide [1]. Further, a comorbidity of obesity increases the risk of developing lymphedema and can result in irreversible damage to lymphatic function. Access to [...] |
Comparison of Household Environmental Factors among Children with Reported Asthma and Controlsby
![]() Abstract The present research was part of a cross-sectional project involving children aged 8 to 10 years in Porto, Portugal. The project involved a first research part at primary schools where the health tests and a questionnaire were performed and a second research part concerning environmental conditions. Two groups emerged from the health questionnaire answe [...] |
Mechanics of ABS Polymer under Low & Intermediate Strain RatesAbstract Thermoplastics polymers like Acrylonitrile Butadiene Styrene (ABS) are often reinforced with nano/micro reinforcements to enhance their mechanical, thermal and electrical properties. However, the viscoelastic nature of these polymers results in their strong dependence on the applied strain rate and temperature sensitivity, leading to their characteri [...] |
Spectrophotometric and Spectrofluorimetric Quantification of Urea via Silver Nanoparticles Prepared by Wet Chemical MethodAbstract Silver nanoparticles have been utilized in an easy, sensitive, and effective approach through spectrophotometry and spectrofluorimetry to quantify urea in water samples. Here, 1,3-di-(1H-imidazole-1-yl) -2-propanol (DIPO) was employed to stabilize Ag NPs produced from the reduction of aqueous silver nitrate by sodium borohydride (NaBH4). Beer-Lambert [...] |
Monitoring Survival Following Lung Transplantation with Inclusion of Unaccounted Risksby
![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() Abstract Lung transplant (LTx) survival and quality of life have been steadily improving, partially from changes in candidate selection for transplantation. There are well-known high-risk factors that lead to poor LTx outcomes, which may be referred to as ‘accounted’ risks. However, there are also other ‘unaccounted’ risks that are not included in the [...] |
New Technologies to Support People with Neurodevelopmental Disorders: A Selective ReviewAbstract Neurodevelopmental disorders represent a cluster of conditions first diagnosed during childhood or adolescence (i.e., including intellectual disability, autism spectrum disorders, motor deficits, and communication deficits). The main characteristic of neurodevelopmental disorders is the presence of a deficit or a delay in the acquisition of skills that [...] |
Cost-Effective Biodiesel Synthesis from Waste Marble Powder as A Green Heterogeneous Catalyst Using Pongamia Pinnata Oilby
![]() ![]() Abstract Waste marble powder (WMP) is Investigated for developing heterogeneous catalysts by calcination method and used in biodiesel synthesis by esterification-transesterification process from Pongamia Pinnata oil. Hammet indicators, Fourier transform infrared (FT-IR), Thermogravimetric analysis, and X-ray powder diffraction (XRD) techniques were also studied [...] |
Sustainable Synthesis of Zeolitic Imidazolate Framework-8 Nanoparticles and Application in the Adsorption of the Drug Chlorhexidineby
![]() ![]() ![]() ![]() Abstract In an attempt to synthesize nanomaterial concerning chemistry, the sustainable synthesis of Zeolitic Imidazolate Framework-8 (ZIF-8) nanoparticles by a low-cost approach through the recycling of waste mother liquors was explored and then indicated the potential to remove chlorhexidine (CHLX) from an aqueous solution. ZIF-8 was produced under solvotherma [...] |
Morpholine-Based Novel Ionic Liquid for Synthesis and Characterization of Triazolidinethiones and Their Biological Propertiesby
![]() ![]() ![]() ![]() ![]() ![]() Abstract Keeping the green chemistry approach in mind we have synthesized a novel morpholine-based ionic liquid [NBMMorph]+Br-. The structure of Ionic liquid was confirmed by spectral techniques viz. IR, 1H NMR, and 13C NMR, analysis. The synthesized novel IL [NBMMorph]+Br- was utilized to prepare 1,2,4-triazolidine-3-thiones of biological significance. The [...] |
Trauma and Distress on a Cruise during the COVID-19 Pandemic: A Qualitative Study with Italian and French Touristsby
![]() ![]() ![]() ![]() ![]() ![]() Abstract The COVID-19 pandemic has drastically changed our daily lives. One of the sectors most affected was tourism and travel – and, more specifically, cruises, given the prolonged time passengers spend with others within the small spaces of the cruise ship. While finding well-organised entertainment opportunities on cruises is possible, emergency conditions [...] |
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